Comments on: What are we uniting for? http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/ Thu, 21 Apr 2011 19:31:36 +0000 hourly 1 http://wordpress.com/ By: stronwi http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/#comment-10 Sat, 22 Aug 2009 14:49:52 +0000 #comment-10 That’s all great news Heather! Just let us know when you are ready and we’ll send you specifics about how to have checks made payable, credit card donations, etc. to make sure that your donations are credited properly to your Unite For The Cure campaign through FSMA.

Have a great weekend!

Bill Strong
bill@GwendolynStrongFoundation.org

]]> By: Michelle Armelli (LeAnna's grandma) http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/#comment-8 Fri, 21 Aug 2009 11:59:29 +0000 #comment-8 The Lord is working through you on this cure as He has heard our prayers! My granddaughter LeAnna was diagnosed at 6 months with SMA type 1. She is trached/vented. It seems that EVERYONE is against us on her care. I pledge to do whatever is needed to help with leading to this cure!
Hugs & prayers!!
God Bless!!

Michelle & LeAnna

]]> By: Sarah Turnbull http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/#comment-6 Thu, 20 Aug 2009 04:43:44 +0000 #comment-6 I echo the Lee family . . . bless you for doing this! So often I’m thinking of the things that need to be done to make it a reality that a cure is available . . . and there you guys are . . . doing exactly what needs to be done by having parents make funding commitments to make it a reality. If each of us does our part, we will get there!! We are on board with you all!!!! Big hugs from Iowa! Keep up the great work–we are so thankful that you guys have been such a face for SMA, actively in the public. Please know we are thankful for the petition and now this! Please let us know how we can help you all! Together we will finalize a cure, right???? :)
Sarah Turnbull, Stella’s mommy

]]> By: Shane, Jennifer and Jocelyn Lee http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/#comment-4 Wed, 19 Aug 2009 17:47:26 +0000 #comment-4 First of and before anything…GOD BLESS YOU! The Lord has heard our cries and he is showing us that SMA WILL be cured. We are the blessed parents of a beautiful 28 month old angel named Jocelyn. She was diagnosed at 6 months old with SMA type 1. Since that day we have prayed each night for the Lord to deliver a cure for not only her but for the SMA community. We have seen repeatedly how the Lord has answered prayers. We started the Jocelyn Paige Lee Foundation to help with bills, but also to make contributions throughout the year to research like this. We have had 2 charity dinners/auctions, as well as 2 golf tournaments. We will continue to raise funds to help with wonderful research programs like this. May God bless each of you and all the researchers involved in this.

In His Love,

Shane, Jennifer and Jocelyn

]]> By: Heather Wente http://uniteforthecure.com/2009/08/16/what-are-we-uniting-for/#comment-3 Wed, 19 Aug 2009 09:16:55 +0000 #comment-3 Hello Im in the process of getting a grant through my mothers job and once they approve it they could award 2500 dollars towards FSMA.I spoke with Tim Walker and informed him that is where I wanted the money to go.Also my family and I are have a yard sale on Sept.5th and what we make from that i am putting towards it as well.Hopefully here soon I will have a bowling fundraiser set up as well.I dont want to commit just yet until I get everything taken care of.Once i find out about the grant I will commit to one of the postions.Thanks so much!!We can do this…our children deserve a chance!!

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