Hey, meet two more amazing SMA families that have jumped on Unite For The Cure to help raise $100,000 for Dr. Keirstead’s SMA stem cell program.
Why have the Potters and Reillys decided to unite for the cure?
The Potter Family: Our son Marshall was diagnosed with SMA Type I when he was 8 weeks old. Sadly, he passed away at just 4 months & 6 days old. Remembering how difficult it was for us to gain insurance approval for the necessary items he required to stay comfortable, we wanted to do something to help families dealing with the same thing. Within a year after we lost Marshall to SMA, we teamed up with the Reilly family and Connor’s Fun Run and formed a non-profit organization called “Marshall’s Miles” in support of SMA families and research for a cure. We are committed to doing as much as we possibly can so that we may live to see a cure for SMA. While it is too late for our own son, it is not too late for the many children who are still living with SMA, as well as those who will be born with it in the future. We are very excited about the progress that is continually being made for people who have SMA. It is an honor for us to be a part of Unite For The Cure!
The Reilly Family: Bill and Karen Reilly’s third son, Connor was born in 2002. He was diagnosed with SMA Type 1 at 5 weeks of age. Connor is a happy 7 year old who tele-commutes to school via web conference. Connor is dependent on a ventilator to breathe and requires full time care. A number of years ago the Reilly family teamed up with the Potter family in raising funds for the foundation that Mark and Laurie created in memory of their son Marshall. The mission of Marshall’s Miles is to support families that are dealing with SMA as well as raising funds toward the cure. The current mission that Dr. Kierstead and his SMA stem cell program is on, is the first one in 7 years that sounds very promising. Over the next several weeks, we are committed to a letter writing campaign to help support Marshall’s Miles commitment of $5,000 for the Unite For The Cure!
Welcome aboard Potter and Reilly families! We are so happy that you have decided to work together and be part of Unite For The Cure!
