The Coleman family of Utah, whose darling two-year-old son, Jonas, has SMA Type 1, have reached their personal goal of raising $5,000 for Unite For The Cure! Their hard work has helped accelerate Dr. Keirstead’s SMA stem cell program at UC Irvine. Congratulations to the Colemans on raising $5,168 in just two months and way to go!!!
Meet Whit, Lindsey, and Jonas Coleman of Utah. The Colemans have enthusiastically jumped on board Unite to help collectively raise $100,000 to get Dr. Keirstead’s groundbreaking SMA stem cell program to human clinical trials and to accelerate the program. Welcome aboard Coleman Family!
Why are the Colemans uniting for the cure?
Whit and Lindsey Coleman are thrilled to be the parents of Jonas Mathie Coleman. Jonas joined their family perfectly healthy on December 2, 2007. Whit and Lindsey were so excited to start the adventure of raising their first baby boy. Six weeks later, they were heartbroken to learn that Jonas was diagnosed with SMA Type I. They had never heard of this horrible disease and neither of their families have any history of SMA. Coming to terms with their new life and changing their expectations of what they wanted was difficult. However, Jonas wasn’t going to give up and so they couldn’t either. Since then, the Colemans decided not to let this disease run their lives but would do all they could to give Jonas every opportunity to have a full and fun life. Jonas is now 22-months-old and each day they have with him is a gift. Due to the progressive nature of SMA, they know that their time with him is limited. Unite for the cure gives them the hope that they will have a lifetime with him and the security that they can have a healthy family in the future.
You can follow Jonas’ adventures on their blog at Coleman2Family.blogspot.com.
