Tag Archives: McClay

The McClay Family: Spaghetti Feed Huge Success, Raises Over $16,600,

The McClay family of Washington set an ambitious personal goal to raise $10,000 for Dr. Keirstead’s research through the Unite For The Cure campaign. Not only did they reach this formidable goal, they surpassed it — with one event!!! Here is what Rozie McClay, mom to darling Kiley, SMA Type II, had to say about their fun and successful fundraiser:

The Unite for the Cure Spaghetti Feed was an amazing event.  Our family and friends went above and far beyond the call of duty.  The community support we received warmed our hearts.  We had auction items and raffle items including Cabela’s camping gear, spa baskets and mixing bowls with all the goodies to make cookies!  We had table service with a smile, delivering delicious plates of spaghetti, garlic bread and salad.  A side table overflowed with homemade cookies, brownies, and cheesecake. The kids enjoyed a craft table where they were able to make turkeys and color Christmas ornaments.  We had wine tasting of our very own Unite for the Cure Pomegranate Zinfandel featuring Kiley’s picture on the label.  At the end of the day, we were able to send in more than $11,000.00 to add the incredible efforts of everyone involved with Unite for the Cure. Bring on those human clinical trials!

We know this event did not happen without a lot of hard work and we are so glad it was such a fun and positive experience. Way to go McClay family and congratulations!!!

In addition to the funds raised during the spaghetti event, Shelley and Marshall Eisenberg, aunt and uncle to Kiley McClay, have personally donated $5,000 to the Unite For The Cure campaign for Dr. Keirstead’s SMA research. And this is why:
When my brother and sister-in-law, Steve and Rozie McClay, told us their beautiful daughter Kiley had a disease called Spinal Muscual Atrophy we were devastated.  It seemed unreal.  Like any large family, ours had it’s share of ups and downs, but mostly ups.  This was different.  We were unsure how we could console Steve and Rozie.  We knew their pain and sorrow would need time and space and we felt helpless. They had just closed on a new house that needed some work. We got busy.  Along with some of their friends, our family helped paint the inside of their new home so they could move in.  It felt good to know that we were involved in something that could really help.  When we found out about Unite For The Cure and how Dr. Keirstead needed gap funding for his research we knew we needed to get busy again.  We knew we needed to be part of raising money for this. We knew in our bones that Dr. Keirstead’s motor neuron replacement trials were the best hope for a cure and we knew the time was now.

With only a little over a month to plan, we raised $11,691.00 (with more on the way) by hosting a spaghetti feed/raffle/auction fund raiser, from donations from friends, family and caring strangers and from donations from a host of amazing retail establishments.  My husband Marshall and I donated an extra $5,000.00 in addtion to the fund raising monies for a total of $16,691.00!  We had been waiting for the right time to donate to an SMA cause on behalf of a very generous individual, Artemis Joukowski, and on behalf of Kiley McClay. Without question, Unite For The Cure was the venue we had been waiting for!
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This whole experience has been so uplifitng to our family and friends. Thank you Strong family, Families of SMA and everyone who helped us reach above and beyond our goal, giving us such hope for a cure.  You mean the world to us. And last, but not least, thank you to Dr. Keirstead, without who’s intelligence, caring, and dedication, none of this would be possible. 
Warmest Wishes,
Shelley and Marshall Eisenberg
$16,691 to accelerate Dr. Keirstead’s research — amazing!!! Enormous congratulations to the entire McClay team!!! And thank you!!!

The McClay Family: A Joyful Life, A Race For The Cure

Check out the great article in The Chronicle, “A Joyful Life, a Race for the Cure”, about the McClay family of Washington and their Unite For The Cure event. Click here or on the image below to read the article.

McClay Chronicle Story

The McClay Family: Spaghetti Feed Extravaganza

The McClay family of Washington have organized a super fun family event in their community: a Spaghetti Feed!!! Delish! And, in addition to a yummy meal, they have also organized a silent auction and door prizes — and all for a great cause! So come on out Sunday, November 15th from 2:00 to 6:00 for an evening of fun!

Spaghetti feed kiley on blanket

Steve, Rozie, Kiley and Quinn McClay, uniting for the cure!

The McClay family of Washington is our 20th Unite For The Cure family! There is absolutely no reason that we can’t have more than 20 families uniting for the cure, but when we created this campaign our goal was to motivate 20 families impacted by SMA to help raise $100,000 for one simple goal: to make sure funding was not an obstacle to getting Dr. Keirstead’s SMA stem cell program to human clinical trials as quickly and as safely as possible and to accelerate the program. We have once again been humbled by the resolve and dedication of this vibrant SMA community; passionate resolve and dedication in the midst of such unfathomable challenges and obstacles. I think a quote that the McClay’s included in their Uniter bio/profile says it best:

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” — Margaret Mead

Why are the McClays uniting for the cure?

The McClay’s seven year old daughter, Kiley, was diagnosed with SMA Type II at 16-months-old. First and foremost, they see Kiley as a beautiful, smart, funny and kind little girl who just started the second grade. Secondly, the McClays know the heartbreak she has endured not ever having stood or crawled and the knowledge she has of being different from most of her peers. They want to join this fight because no one should ever have to hear their 3-year-old child cry because her mom and dad have not “taught” her how to walk.

The McClays have been active in Families of SMA, fundraising and spreading the word about the devastation of SMA for the last six years. They have heard Dr. Keirstead speak at several FSMA conferences and it has given them much hope, not only for themselves, but for all the families that are suffering. They do not want the clinical trials to be postponed or prolonged one day longer because of lack of funding.

They thank everyone who is already involved and encourage those who aren’t to help in any way they can.  “If we all work together we can truly make a difference in the progress to cure SMA.”

“Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” — Margaret Mead

McClay Family